the story of a truly awesome boy's battle with medulloblastoma

Monday, May 18, 2015

Nursing Diagnoses - What are they and what ones should I consider?

Nursing diagnoses are a unique kind of diagnosis in the medical world and should not be confused with medical diagnoses. NANDA (the North American Nursing Diagnosis Association) does an excellent job explaining what a nursing diagnosis is and what it is is not. A nursing diagnosis should not focus primarily on the patient's medical condition (because it is not a medical diagnosis) and it should not simply be a way to reword the medical diagnosis. A nursing diagnosis should not act as a specific label for a patient in an attempt to verbalize what you are seeing in the patient.

NANDA defines a nursing diagnosis as, "A clinical judgment about individual, family, or community experiences/responses to actual or potential health problems/life processes. A nursing diagnosis provides the basis for selection of nursing interventions to achieve outcomes for which the nurse has accountability."

A nursing diagnosis should always be formulated after a comprehensive head-to-toe nursing assessment. When a nursing diagnosis is based off of a comprehensive assessment, more effective and safer patient care can occur which often leads to a improved patient outcome.

Below are some nursing diagnoses that commonly arise when working with a pediatric patient with medulloblastoma. It is important to remember that not all of these nursing diagnoses may apply and that a nurse should thoroughly assess the patient and their family members to determine the appropriate nursing diagnoses.



Nursing Diagnosis
Related to
Plan/Outcome
Interventions
Disturbed body image
Hair loss and other body changes
Short term: Patients express a change in body image
Long term:
Patient reports having an positive self-image
Facilitate therapeutic communication with the patient, educate patient on what kind of body changes to expect, education caregivers on coping strategies to discuss with their child, observe the patient in a social interaction
Impaired skin integrity
Chemotherapy and radiation
Short term: skin remains intact, no signs of redness/breakdown
Long term: patient’s skin integrity is maintained
Assess skin integrity every 4 hours, keep skin clean and dry, turn the patient every 2 hours, encourage the patient to consume adequate amounts of liquids and nutrients
Acute pain
Side effects of treatment
Short term: Patient reports no discomfort (no visible grimace/cry if not able to self-report), vital signs are stable, patient is able to participate in activities
Long term: pain management remains consistent with no peaks/troughs in pain levels
Assess characterisitics of pain (OLD CART = onset, location, duration, characterisitics, alleviating/aggravating factors, any radiating pain, treatment options), try to establish a set schedule for administering pain medications, provide comfort to patient (distraction, repositioning, etc.), anticipate pain with activity and pre-medicate patient before activity
Risk for fluid volume deficit
Chemotherapy and radiation
Short term: Intake and output is balanced, skin turgor is present and mucous membranes are intact/moist, electrolytes, Hb, HCT, and vital signs are all within normal range
Long term: Patient understands risks associated with fluid volume deficit and maintains hydration status.
Continually assess: skin turgor, mucous membranes, patient’s thirst level, blood pressure, HR, serum electrolytes, albumin, and CBC
Monitor intake and output, insure adequate intake of fluids (checking IV pumps, etc.),
Anxiety
Unknown future
Short term: patient will express willingness to discuss anxieties, patient will develop coping strategies to manage anxiety
Long term: patient will report a reduction in overall anxiety
Suggest relaxation/distraction techniques to reduce anxiety, maintain a relationship of therapeutic communication with the patient, encourage the patient to verbalize his/her anxieties as they arise, allow the patient time alone to rest

Some other nursing diagnoses not mentioned above but that can be important to consider include: risk for infection, risk for caregiver role strain, risk for ineffective coping, and readiness for enhanced learning.


References:

http://www.nanda.org/What-is-Nursing-Diagnosis-And-Why-Should-I-Care_b_2.html

http://nandanursing.com/nursing-care-plan-for-brain-tumor-intracranial-tumor.
html

http://wps.prenhall.com/wps/media/objects/737/755395/brain_tumor.pdf

Nursing Care for Medulloblastoma

Nurses have a vital role in the care of pediatric cancer patients. They are able to assess the coping mechanisms of not only the patient, but also of their family and loved ones. Based on the coping mechanisms observed, the nurse can provide emotional support and encourage the family to find coping strategies that work for them. The nurse should also encourage loved ones to continue to provide self-care for themselves. Often, parents of a child with some form of cancer will neglect all self-care for themselves and fully invest themselves in the care of their child. This is not sustainable and can lead to a lot of parent burn-out. Therefore, parents and caregivers should be encouraged to actively make their own self-care a priority. Nurses can foster this through small things such as offering to sit in the patient's room while they go get coffee and go on a walk.

Nurses are also responsible for all medication administration to these patients. Often, drugs used for chemotherapy can be very harmful to the veins and can cause a lot of pain when they are being administered. It is the nurse's responsibility to put interventions in place that can either help reduce this pain or distract the child from the pain so that their medications can be appropriately delivered. This can often involve recruiting help from loved ones at the bedside who may be able to provide input into techniques that have worked in the past.



The specific nursing care for a child with a brain tumor will depend on a lot of outside variables including: the age of the patient, the specific type of tumor they had, the family dynamics, the treatments that they will be undergoing, and current neurological symptoms they are experiencing. The nurse will have to continually assess where the patient and their family is at and adjust the care that they are providing appropriately.

No matter where the patient is at, education will be a huge part of the nursing care. Both the patient and their family will need to be educated on what kind of symptoms they can expect, what different treatment options will look like, what kind of side effects may be observed, and how they can best care for themselves when they are outside of the hospital. The nurse will also play a role in helping the family and the patient reenter the world outside of the hospital. They should be educated on supplies to have at home/on them at all times and should be emotionally supported as they prepare to reenter school. Often times, children may struggle with how their classmates will view them as they go back to school with some neurological deficits. No kid wants to seem "different" and it is very hard to not be different when you are coming back to school with a walker after being away from so long. The nurse should be prepared to address these difficult feelings as they come up.

Being a nurse in a cancer care unit requires a lot. It is a job that asks you to be knowledgable, compassionate, friendly, and empathetic. Nurses in these environments truly do some amazing work and can have a huge impact on the lives of their patients.






References:

http://nandanursing.com/nursing-care-plan-for-brain-tumor-intracranial-tumor.html

Cartwright, C. (2007). Nursing Care of the Pediatric Neurosurgery Patient. Berlin: Springer. 



Thursday, May 7, 2015

The Road to Recovery: Treatment Options

Typically, the first step in treating medulloblastoma is undergoing surgery, as Matt did. The goal of this surgery is to take out as much of the tumor as possible and to take a sample from the tumor to confirm the diagnosis.

The next step in treatment is usually radiation. If the surgeons were able to remove all of the tumor during surgery, the patient will be treated with a reduced-dose radiation. If some of the tumor is still left behind, a higher-dose radiation therapy will be used. Radiation involves using a high level of X-rays or another type of ray in order kill the cancer cells and slow their growth. Some of the side effects of radiation include: swelling of the targeted tissue (in this case, the brain), mouth and throat sores, and the risk of developing a second cancer. It is important to still encourage an adequate intake of food and water despite the mouth and throat sores in order to prevent dehydration and malnutrition.

In some instances, the patient will also undergo chemotherapy as a last treatment option. Chemo is an extremely powerful agent and will work to to kill cancer cells and prevent them from replicating and spreading. The chemo can either be given by injection or orally. Both of these routes will allow the effects of the chemo to spread throughout the entire body. One of the most difficult symptoms to manage with chemotherapy is the nausea and vomiting that many experience. Also, alopecia, or the loss of hair, is very commonly experienced and can be difficult for patients to cope with.

Generally, all of these treatment options are done over a long period of time. The Road to Recovery is a long road that runs along side The Road to Awesome. These treatment options all demand a lot from both the patient and their family and many will find it difficult to cope with all of the changes. It is important to remember the emotional side effects and consequences of these treatment options and to utilize support resources for the family and the patient.

References:

http://www.stjude.org/medulloblastoma-pnet

Hesketh, P. (2014). Prevention and treatment of chemotherapy-induced nausea and vomiting. UptoDate 1151(47).

Mitin, T. (2014). Radiation therapy techniques in cancer treatment. UptoDate 89528(8).

Saturday, May 2, 2015

Symptoms of Medulloblastoma

The most common symptoms that occur with the development of medulloblastoma include:

-behavioral changes (mood changes)
-changes in appetite
-unusual eye movement
-symptoms connected to an increased pressure in the brain caused by the tumor:

  • headache
  • nausea
  • vomiting 
  • drowsiness
  • coordination problems 
Some of these symptoms can be difficult to recognize, especially in children. It is not uncommon for young children to experience mood swings (happy one second, throwing a tantrum the next). It also is fairly common for young children to frequently change their favorite foods and to refuse to eat what's in front of them. In Matt's case, they were able to pick up on the symptoms of coordination problems and behavioral changes. He was normally always so optimistic and kind and he was very athletic and coordinated, so in his instance they were fairly easy to pick up on.

Additionally, many diagnosed with medulloblastoma end up undergoing some form of surgery and radiation. There are several different symptoms/side effects that one can experience after undergoing radiation. The two most common symptoms experienced are skin problems (dryness, itching, blistering, peeling) and fatigue (constant tiredness/exhaustion that does not improve with rest). There are also some more serious long-term side effects that can happen after undergoing radiation, the most serious of which being developing a second cancer. However, it is important to remember that there is a relatively low risk of this and, often, the benefits of getting rid of the original cancer usually outweigh the risks.

There are also a variety of symptoms/side effects that are specific to radiation in the head/neck. These include:

-difficulty swallowing
-mouth and gum sores
-stiffness in the jaw
-tooth decay
-nausea
-lymphedema (swelling caused by a lymphatic system blockage)

In addition to all of these medical symptoms, there are a variety of emotional symptoms that both the patient and their family experiences. This can include anxiety, fear and depression. Often, there is a lot of anxiety about whether or not treatment options will work. There can be a great deal of fear about the future and the uncertainty of their condition. Both the patient and their loved ones can become depressed and have difficulty coping with all of the changes.

There are also a variety of symptoms that occur on The Road to Awesome. These can include:

-your siblings shaving their heads
-randomly bursting out into laughter
-spontaneous dance parties and crowd surfing with Michael Franti
-the occasional emotional outburst from Mom
-physical therapists being shocked at your motivation to improve
-an outpouring of love from family and friends


References:

http://www.abta.org/brain-tumor-information/types-of-tumors/medulloblastoma.html

http://www.cancer.net/navigating-cancer-care/how-cancer-treated/radiation-therapy/side-effects-radiation-therapy

http://www.cancer.org/treatment/treatmentsandsideeffects/emotionalsideeffects/emotional-side-effects-landing